Posted in Health

Being an outpatient

I hope you don’t mind me breaking the story up like this as if I didn’t it would be a very long and boring post.

My first appointment with the gyno team went well in October 2015, they didn’t examine me or anything but they don’t seem to do that in clinic at all. It was decided they would take the wait and see approach and I had read online that with cysts that’s what they do so I was happy enough. I did ask about the pill to help but was asked if it was for contraception reasons and I’m not seeing anyone so I said no, so they decided there was no point and I went on my way with another appointment in three months.

Now I  didn’t complain about sore periods as I assumed it was normal also I was given out to about not getting a smear test done they did not offer to do one either, I know it’s important but I am a chicken.

My next appointment in December 2015 I went to with the gyno team they couldn’t do anything as I was meant to have an ultrasound beforehand, they do not have their own ultrasound machine and they do not do it on the day, madness I know also the wait for an ultrasound can be months so I was sent privately.

Another appointment was made for a scan and an appointment with the gyno team was made a month later again the cyst was still growing.

While this was all going on cysts wore bursting inside me instead of going to the hospital I was dealing with it at home, as I felt it was better than having to stay in hospital and nothing being done.

This meant night outs wore ruined as I had to leave as a cyst burst inside me. After your period the danger zone is the next two weeks that’s when a cyst is most likely to burst, again this is what I have been told so my life was constantly on hold and then my period pain always starts the week before my period so I felt like I had no escape from it.

These appointments went on and on till April 2017 and I was also told to go on the pill as it might help even though I suggested it instead of just going to the doctor myself I listened to them, at no time did any doctor examine me during these appointments.

In between all this in 2017, I finally got sense and went for a smear test and it hurt so much there was blood and tears, no one told me this could happen. I done it at lunch time and I was in pain all day, also a sign of endo something you are not told.

In April this year when it was decided I urgently needed to be operated on and I was given a note to go to the bed management, I think that’s what you call them and I went straight down to them. I was told it wasn’t urgent by them and I would have to wait a year. I just started crying then and there the lady dealing with me said the doctor had not wrote urgent on my file and unless you have cancer it won’t happen and suggested I start going to A&E in pain which is something I didn’t want to do.

Now the Beaumont gyno team are only there on a Tuesday, so I had to spend a week waiting to call them regarding the wait and it was very stressful, thankfully it was decided it was urgent and I was told I would be operated on in the next three months.

I got given another appointment to see a nurse for bloods and blood pressure and told I would be sore but I’ll only be a day in the hospital and someone will need to collect me and I was to rest.

On Monday 13th March I got a phone call from Beaumont and was informed the operation will be tomorrow the 14th thankfully I have an understanding boss.

 

Posted in Health

First A&E visit

As I said in my case cysts began to grow and also explode, now I just believed I had cysts on my ovaries at this stage. I knew I had them as they had exploded a few times in the middle of the night and I never went to the hospital till it happened in the middle of the day. Of course it was my Mam that forced me to go to the doctors and they sent me on to the hospital on Thursday 15th October 2015.

A&E in Ireland is not a nice place and the ques are always long, I went into see a nurse first was given pain relief but by this time the pain had gone it just felt like someone had kicked me in the stomach. I was looked at by nurse who informed me
not to eat or drink anything and she also put a line for a drip in my arm and took blood to make things worse I have terrible veins so I hate getting bloods and sent back out to the waiting room. A few hours later, I’m finally seen by a doctor well three doctors who said it was my appendix even though I told them it wasn’t and at this stage the pain would of gotten worse instead it felt like I had just gotten a kick in the stomach. I was admitted into the hospital and given a chair, this is normal in an Irish Hospital. After about hour I was sent for an x-ray on my lungs as I had a cold but not sent for an ultrasound. I was lucky enough to get a bed on a ward that as they wore planning on operating on me in the morning which was not happening without a scan first.

The next morning the first three doctors came around read my chart and told me I should be able to go home than another three doctors came around and informed me my operation went well, they had not even read my chart and got me mixed up with someone else and also said I should be able to go home at no time did they examine me. Than all the doctors came around in a group with a lady doctor who was in charge who read my chart and fianlly examined me and informed them my pulse was ratty and my bloods wore all over the place and I needed more tests.

It was then decided I should be sent for an ultra sound which took a few hours and I also had to get an internal scan which was not nice at all but the nurse was lovely.
While I was waiting for a scan a junior doctor kept popping her head into see if I had my scan done as things have a habit of going missing in hospitals.
When the scan was finally done I was sent back up to the ward and I was told I could finally have some food by a nurse and that I was being kept in again another night and as it was a Friday there was no doctor around to speak to me or give me a reason why of course I was scared to death and very upset.
At this stage all I wanted to do was go home and have a shower, the shower in the hospital was disgustingly dirty so you could not use it so of course I was checking myself out till I ran into the junior doctor at the lift who informed me in the hall way in front of everyone that I had loads of choclote cysts leaking blood, which is a sign of endo now I did not know this at the time.

I decided it would be smart to stay in the hospital as the gyno team would be around tomorrow, well that’s what I was told but it’s the weekend and of course Saturday came and no doctor arrived so it was decided that they would realise me and make an outpatient appointment for me for Tuesday and at this stage I just wanted to go home and shower and get a good night’s sleep.

Posted in Health

My Health 

Anyone who reads my blog knows I applogised for lack of posts as I was sick, I didn’t go into detail and I really thought long and hard if I wanted to write about what was wrong with me and I decided maybe it can help someone.

I have endometriosis.

First off I’m not a medical professional or even an expert on this,this is my story.

Let’s start with what endometriosis is, I had never heard of it either.

 So tissue that is meant to stay in the uterus grows outside of it. Mostly on your ovaries, bowel, bladder, and elsewhere throughout the pelvic cavity. So that sounds shite but it gets worse because it’s uterine tissue it bleeds once a month and your body cannot clear it. This than leads to swelling, inflammation, and continued growth of the tissue which may lead to cysts growing and in my case it did.

As you may have guessed this leads to very painful periods and bleeding heavily.

The pain would wake me up at night my back my stomach and my legs. At times I would just sit in work praying the pain would end no pain killer’s seemed to work. If you wore to look up my google search the main question I asked does period pain get worse as you get older, I never seemed to be able to find the answer.

 The heavy bleeding, I’m going to be as honest as I can  even if it is embarrassing. No matter what I used towels tampons, I had to run for the bathroom in the morning as the blood would just run out of me and I would destroy everything .

Also ovulation is a killer you can feel it happening it stops you in, in your tracks.

Than the mood swings with me it was like I had a voice in my head telling me no one liked me. I would sit there and look at my wrists thinking about cutting them and dreaming of the blood running down my arms but I just put this down to having your period and everyone has PMS.

Than the worse thing is lack of energy,  I am exhausted all the time it even hurts to just think of doing things.

How to find out if you have endometriosis, well the only way to do this is by having a laparoscope.

So over the next few days or even weeks I’m going to tell you my story. I’ll start at the beginning my first A&E visit and what’s going on now.

Lots of love

Carol

Xxx